WE ARE
GO RARE seeks to dissolve the boundary between rare and common.
Rare Disease will no longer be sidelined.
Rare disease rights are human rights. It is time to unite in support for change. Helping those affected will not only bring great and lasting benefit to their lives, but to society as a whole. The rare disease community has waited too long for a seat at the table. So now, we are making our own table. Join GO RARE in leading the charge.
Why
?
At present, there is no disease agnostic organization promoting a social justice movement to focus on rare disease rights. GO RARE will be that change. The rare disease landscape is stagnant and the community is being ignored. Though rare diseases are many in number and type, we must join together under one movement, because despite our differences, our rights are deeply interconnected. GO RARE serves as a vital voice, an umbrella under which ALL patients, families and our allies unite. GO RARE fights for the rights of our community in a way that has not been done before- by partnering globally with society as a whole. If you are a patient or caregiver who is tired of the way things are, you no longer have to feel alone in your struggle; we are here to fight together.
As well as effectively uniting patients and families, GO RARE goes one step further than other organizations by inviting allies to join us in this fight. Allyship is key to the advancement of rare disease rights, and we encourage our members to engage their wider communities (i.e. families, friends, doctors, baristas, teachers, co-workers, etc.) to stand with us in our activism.
If you are reading this as a prospective ally, and are wondering how you can help, know that you are critical to the success of this movement. We hope you will provide whatever support you can lend, whether it's marching with us in protest, sharing GO RARE content online, fundraising or writing to politicians, and the list goes on.
GO RARE demands change, and we refuse to be ignored.
1
Awareness
Improving visibility of rare diseases in the public eye through education.
2
Advocacy
Taking action to make meaningful changes for patients and families living with rare diseases.
A combined effort for a common goal
THE
PILLARS